CMSC/ACTRIMS ROUNDUP: NARCOMS DATA IN ACTION

At the end of May, the NARCOMS staff attended the Fourth Annual Meeting of the Consortium of Multiple Sclerosis Centers and Americas Committee for Treatment and Research in Multiple Sclerosis. The meeting took place May 30 through June 2 in San Diego, as this issue of NARCOMS Now was going to press.

 The goal of the CMSC meeting is to provide MS healthcare professionals with the most up-to-date information impacting patient care. NARCOMS researchers contributed in many areas, all using results from surveys to which you have contributed, including:

• Walking Speed and Health-Related Quality of Life in Multiple Sclerosis Patients
• Does Risk Tolerance to MS Therapies Change over Time? A NARCOMS Survey
• How are Relapses, Symptoms, and Disease Progression Linked in Early Multiple Sclerosis?
• NARCOMS: Simple Observation of Relapses Perceived to be Inferior to Therapy
• What Prompts a Switch to Disease-Modifying Therapy Beyond First-Line Therapies?
• Time to Disability Progression as Measured By Patient Reported Outcomes
• Item Response Theory (IRT) Methodology Can be Used to Place Common Clinical Measures of Multiple Sclerosis Progression on a Single Linear Scale of General Neurological Disability
• Pelvic Floor Disorders and Multiple Sclerosis: Are Patients Satisfied With Their Care?

 

REMINDER: A Chance to Advance MS Research

Recently you may have received a letter notifying you of your eligibility to participate in a research study entitled, “Examining the effects of physical activity, fatigue management education, and social support using a telehealth intervention approach among adults with multiple sclerosis.” This exciting opportunity will allow you to help further the understanding of the impact that educational programs delivered via phone have on improving health and function in adults with MS. If you’re interested in participating, please call the number listed on the recruitment material sent to you, and thank you!