As someone who has had MS for 36 years, (diagnosed 35 years ago), I offer my experience hoping it might be helpful to people with more recent diagnoses.  When I first found out that I had MS, I read up about the disease.  I'd barely heard of it.  I knew what might be coming. 

For the first 18 years where I only had brief 2 week relapses every 2 years, I was extremely grateful.  But I never thought that I could "beat it".  When I began to have extreme fatigue and difficulty walking, I wasn't surprised or shocked.  I had no control over the disease, but at least I wanted control over my mental health.  Not wringing my hands and accepting possible reality helped me face the future calmly. 

In 2000, my neurologist suggested that I give Novantrone a try for my fatigue.  After 8 months of receiving the injection once every 3 months, my fatigue became manageable.  I stayed on it for 3½ years (longer would have hurt my heart) and the fatigue hasn't returned. 

I AM PREPARED THAT THE FATIGUE MIGHT RETURN AT ANY TIME. 

Again, I won't be shocked.  I can no longer drive.  I am what is called "wheelchair bound".  But I use a scooter, go to the library, scooter to the neighborhood coffee shop for lunch with friends, and ride to the river to read a book.  Adult refugee students come to my home for English-as-a-Second-Language lessons.

I don't fool myself that this plateau will last forever, but until the fatigue returns or other dastardly MS symptoms arise, I say, "Enjoy your life.  If you don't who will?"

Acceptance and moving forward has worked for me. 
Best of luck to all of us!   

Melinda F.   

 

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NARCOMS Now Note: Not all medications will work the same for everyone, please consult your physician about how to treat your symptoms.